Why Does NHS Digital Collect Data?
NHS Digital is legally responsible for all health and care data in England
So they are responsible for collecting, analysing and sharing it.
They have done this for over 10 years.
How is it Used?
Research the long-term impact of coronavirus on the population
Understand whether certain groups of people are getting fair access to care
Research and develop cures for serious illnesses
NHS Digital confirmed they will never share with marketing or insurance companies
Only shared with trusted NHS and research organisations
What data is taken from the practice?
This data will be shared from 1 September 2021. Data may be shared from the GP medical records about:
Patients registered at the practice
Will not collect patients’ names or addresses.
Any data that could identify you is replaced with a code
NHS Digital will collect structured and coded data from patient medical records.
We would like to make it clear that there are two types of opt out.
Type 1 applies at practice level and means that your medical record is not extracted from the practice for any purpose other than direct care.
Type 2 (National Data Opt Out) means data can go to NHS Digital for their lawful purposes but cannot be shared with organisation beyond NHS Digital for research and planning purposes.
If you wish to apply Type 1 Opt Out, please let us know and we will apply this at locally to your clinical record. This will mean you data is not extracted on the 1st of September 2021.
If you wish to apply Type 2 National Data Opt Out you must do this directly with NHS Digital. You can do this in a few ways:
1. By following the instructions here https://www.nhs.uk/your-nhs-data-matters/manage-your-choice/
2. Emailing firstname.lastname@example.org
3. Calling 0300 303 5678 (lines are open Monday -Friday 9am-5pm)
4. Writing to:
National Data Opt Out
7 and 8 Wellington Place